American College of Rheumatology
Founded in 1934, the American College of Rheumatology (ACR) is the leading not-for-profit professional association, and it supports more than 9,600 rheumatology experts, including those who both treat and study psoriatic arthritis. It maintains a Rheumatology Provider Directory and offers a variety of patient resources, including information about psoriatic arthritis.
Advocacy work is also a priority: The ACR started Rheumatic Disease Awareness Month, which takes place every September with the goal of spreading awareness about these conditions and the personal and economic toll they take on people.
More locally, the ACR encourages people to contact the government representatives who are responsible for making policy decisions that affect their daily life. By sharing your personal stories about treatment access or cost issues, you can help the ACR solve policy problems that have an impact on people with psoriatic arthritis and other rheumatic diseases.
You can connect with the ACR through Facebook, Instagram, X, and YouTube.
CreakyJoints
CreakyJoints is part of the Global Healthy Living Foundation (GHLF), a nonprofit advocacy group that has been working since 1999 to improve quality of life for people living with chronic diseases such as psoriatic arthritis. CreakyJoints is a community of thousands of people across the United States who are living with various forms of arthritis, and it’s one of the GHLF’s biggest networks.
CreakyJoints offers a variety of important educational resources for people with psoriatic arthritis, including information on:
You can download their free app, PatientSpot, to better track your symptoms and stay on top of your treatment regimen. You can use the app to share data with your doctor, which can help you both make more informed decisions about your care.
It also offers a webinar series and podcast network to spread information within the community. Additionally, they collect patient-submitted stories on what life with arthritis is really like. To learn more, sign up for their Psoriatic Arthritis Wellness newsletter series, which is packed with information on how to ease psoriatic arthritis symptoms, and follow their organization on Facebook, X, and YouTube.
Psoriasis and Psoriatic Arthritis Alliance
Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is a United Kingdom–based charity aimed at empowering people living with these conditions, as well as their loved ones and healthcare providers.
PAPAA supports research into the causes, prevention, and management of psoriasis and psoriatic arthritis and encourages their community to get involved. Along with educational materials, the PAPAA offers a variety of unique resources, including:
You can also join the PAPAA Forum to ask their community of people with psoriasis or psoriatic arthritis questions or share your opinions and experiences with the group. Create a free account to get started. Connect with the PAPAA on Facebook, Instagram, TikTok, YouTube, and X.
